DM Center Partners in Mission

Myotonic Dystrophy Foundation

The Myotonic Dystrophy Foundation (MDF) is the leading global organization dedicated to supporting, educating, and advocating for individuals and families affected by myotonic dystrophy.

International Myotonic Dystrophy Awareness Day

Myotonic dystrophy (DM) is a devastating neuromuscular disorder and the most common cause of adult muscular dystrophy. As the disease is also difficult to diagnose, the discovery of a baby with DM frequently results in the realization that many extended family members are also affected by DM. September 15 is designated as the International Myotonic Dystrophy Awareness Day to spread awareness on DM to public.

Muscular Dystrophy Association

MDA works towards accelerating groundbreaking research and develop innovative therapies, improving lives for those affected by muscular dystrophy, ALS, and neuromuscular diseases.

"All that Jazz" - MDA fundraiser

The RNA Institute team had the pleasure of sponsoring tables at the Muscular Dystrophy Association of Eastern New York fundraiser, "All that Jazz" for the last three years. Our institute director Andy Berglund serves on the Advisory Board of MDA.

Albany Medical Center

NYDMCenter collaborates with the researchers and clinicians at the Albany Medical Center on various directions of myotonic dystrophy research.